Owen In The News

Please visit the links below to see Owen’s story in the news! A sincere thank you goes out to everyone who is helping to spread awareness of the need for bone marrow donors.192

NY Daily News 4/21/14

Daily News- 12/9/13

CNN – 11/30/13

nj.com – 11/16/13

News 12 Long Island- 11/9/13

Fios 1 News- 11/9/13

 

Eyewitness News Channel 7 Video – 11/6/13

Pix11 Morning News – 11/6/13

Crossfit Jersey City Blog – Burpees for Owen – 11/5/13

 WCBS New York – 11/2/13

 

Boomer & Carton Radio Interview- Audio File 10/31/13 and article

Daily News Print Article- 10/31/13

NY Daily News.com – 10/30/13

 

 

Long-Island.Newsday.com – 10/29/13

MyFoxNY.com – 10/28/13

Pumpkin Spice Bread for Owen – 10/28/13

Long Island News 12 – 10/27/13 

 

3 thoughts on “Owen In The News

  1. Dorothy Shuler

    My husband and I came across Owen’s story yesterday in the Daily News. Owen melts our hearts and we will be registering to “be the match”. We lost our 5 month old son named Owen in 2008 from another rare disease called, Spinal Muscular Atrophy (SMA). There was no treatment or cure to save our son and we would have given anything to save him. Our hearts are with you. We are registering and will help spread the word about your Owen, in the hopes that his match is found. Hang in there! Sending love from Rockland County, NY.

    Reply
  2. Linda Adams

    My son was diagnosed Jan of 2011 with Severe Aplastic Anemia, he was 13 yrs old. As you know, it’s a devastating diagnosis. We eventually learned his was of a genetic nature. ( not hereditary )
    He had an inversion 6 chromosome, only 2 other reported cases of this particular chromosomal defect in the world. Eventually his diagnosis was Aplastic Anemia/Mylodisplastic Syndrome. We live in CT so his initial treatment was at Yale, Dr. Paul Jubinsky…an amazing doctor, took care of him for 7 months, but we soon learned of his need for transplant and Yale could no longer help us. We went to Sloan Kettering in NYC, they found us an excellent match. He had a t-cell depleted bone marrow transplant in July of 2011. It wasn’t an easy time, but today he is an unbelievably healthy 16 yr old young man. Words can not explain the professionalism, the care and hope that we received from Sloan. The pediatric bone marrow transplant team is SUPERB ! I can’t say enough about them, they will do everything in their power to help these kids. Our Dr. Was Trudy Small, who unfortunately recently passed away, but Dr. Bouillad, who is the Medical director and part of the team, is now our primary. I strongly urge you to seek them out. If there is a way to help Owen, they will find it !!!!
    It is not an easy road, but there is hope….lots of it. Please, please, please…consider Sloan. My son is alive and well because of them.
    My heart goes out to you and your son. I understand completely what you’re going through. If there is anything I can do to help, please contact me at anytime.
    If interested, please join our “angels for Alex” Facebook page. You could read about his journey.
    One of our nurses, myself , and a few other cancer Mom’s have started a foundation for Pediatric. Cancer Research. Check out our website. http://Www.iacrfoundation.org
    We are all in this fight together !! I am here if I can offer any support. GOD Bless Owen and your family.
    sincerely, Linda Adams

    Reply
  3. Lauren Briggs

    My husband brought your story to my attention tonight, Owen and your family were on channel 12 news. Our daughter who is 14 was diagnosed last October with Aplastic Anemia. Talk about your life changing in a second flat!! We feel your pain. She was first treated at Cohens as well. Very quickly we were told she needed a bone marrow transplant. I did some research and was told to get her into Sloan Kettering with Dr. Farid Boulad. We went to see him December 6th and she was admitted there January 2,2013 and had her transplant January 8th. I read the post before mine and saw their son was treated at Sloan Kettering as well. Dr. Boulad is an amazing man and doctor. I can’t say enough good things about him. He is the man to see. If I can be if any help please call me, you can reach me at (number shared with family). Our family is sending your family prayers and positive thoughts!
    Very Warm Regards,
    Lauren Briggs

    Reply

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