11/11/14 Be The Hero For A Hero Fundraiser

10702189_1579172428980351_1485723359248558026_nTim and I had the honor of attending a Be The Hero For A Hero fundraising event this past weekend. This non-profit organization has made it their mission to save lives by promoting the National Bone Marrow Registry, aiding families, and spreading awareness. It is comprised of a group of amazing people who have been a HUGE support system for our family. Be The Hero For A Hero was created in honor of FDNY Firefighter Roy Chelson, who developed Multiple Myeloma as a result of his dedication to the WTC site from 9/11. Although we never met Roy personally, Tim knew of him…as he was “legendary in the FDNY”. As we learn more about him and hear stories from friends and family, it is clear that he was a one-of-a-kind, absolutely amazing guy. Like many people suffering from life-threatening illnesses, Roy needed a bone marrow transplant, but was unable to find a match and lost his battle on 1/9/11. When Owen was diagnosed, we received a call from Trish, Roy’s wife. From that day forward, she kept in touch with us, gave an extremely generous donation, and most importantly, helped spread the word of Owen’s need to find a match for transplant. At the fundraiser, we got to meet many people who follow Owen’s journey and a firefighter who also had Aplastic Anemia and a bone marrow transplant last year. It was an emotional evening and we felt so much love and support from everyone there. As baskets were raffled off, Owen’s name was called to receive a beautifully crafted, hand-made dresser (even though we did not have the winning ticket). We later learned that everyone who entered for that prize, wrote Owen’s name on the back, so he could have a special gift. Words can’t describe how grateful and thankful we are for the generosity and thoughtfulness of others. We really don’t think we could have made it this far without so many people helping us along. Please check outwww.betheheroforahero.org to learn more about this incredible group with a life-long mission that we share…to save more lives. They have ongoing fundraising through Gymboree, a solar company, and jewelry. Their site has lots of great info on registering for the Bone Marrow Registry. They have set a goal to get an additional 1,000 people to join the list this year!

This photo was from April of this year. Owen was wearing his Multiple Myeloma shirt in honor of FF Roy Chelson and FF Jimmy Martinez (who is still searching for a match for transplant).

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If you shop at Gymboree, Crazy 8, or Janie and Jack, please use the Be the Hero For a Hero link. The stores will donate 10% of all purchases towards their mission to help save lives! Please share with friends and family!

This is the link: http://bthfah.onlinefundraiser.net/

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